About PWSA Iowa

The Prader-Willi Syndrome Association of Iowa is a chapter of PWSA (USA). It is an independent, volunteer organization whose mission is to Educate, Support, and Advocate for persons with Prader-Willi Syndrome, their families, and professionals in meeting the challenges of this disability.

The Prader-Willi Syndrome Association of Iowa was established in 1995 by a group of concerned parents of individuals with PWS. It is governed by officers/Board of Directors who are elected by the membership every two years. PWSA of Iowa provides the following services:
Tyler Stumpf - growing up

  • Sponsors trainings and conferences
  • Distributes pamphlets and informational materials at conferences and workshops across the state.
  • Conducts 2-3 support meetings a year.
  • Publishes a newsletter 4 times a year.
  • Acts as an advocate for persons with Prader-Willi Syndrome by participating in residential and educational planning meetings, providing phone consultation and sharing correspondence that assist in education those who support these individuals.
  • Connects families and professionals to resources available in their community.
  • Participates in committees and coalitions which support the needs of persons with PWS.
  • Provides yearly camp scholarships.